Genetic Metabolic Dietitians International

GMDI Strategic Plan

Strategic planning is an organization's process of defining its strategy or direction, and making decisions on allocating its resources to pursue this strategy, including its finances and membership. In order to determine where it is going, the organization needs to know exactly where it stands, then determine where it wants to go and how it will get there. The resulting document is the strategic plan.

OCTOBER 2010: development of the strategic plan

The GMDI Board of Directors, along with invited representatives of members at large, held its first strategic planning conference in October 2010. The purpose was to evaluate how well GMDI has met member needs during the organization’s first five years, and to plan how to continue to address those needs during the next five years.

Discussions were based on member survey results and defined goals supporting the GMDI Mission Statement. A “Strategic Articulation Roadmap” (see illustration) was developed to focus and prioritize projects that best address these goals. Five projects receiving high priority were assigned 2011-2012 timelines, then delegated to an appropriate GMDI committee or Board member for completion. These projects are:

  1. Enhance and market Metabolic Pro – The Technology Committee will enhance the database, develop a maintenance plan, and improve marketing.
  2. Complete 3 disease specific (MSUD, PA, PKU) nutrition management guidelines – Collaborative guideline development is in progress with SERC, and more frequent progress notifications will be posted on the website.
  3. Executive Director – The Executive Committee will recruit and hire an Executive Director who will be responsible to the Board but act to identify opportunities for GMDI to contribute expertise on a broad scale and pursue funding for GMDI.
  4. Create library of clinical tools and resources – The Education Committee will increase resources and practice tools available to members on the website.
  5. Fundraising – The Finance Committee will work with each Board committee to identify and implement appropriate fundraising projects.

Routine conference calls will be held with “stakeholders”, Board members responsible for these priority projects, and the facilitator of the Strategic Planning meeting will work with the GMDI President to coordinate effective progress. As these projects are completed other projects will be given priority for initiation.

GMDI is grateful to VitaFlo and Applied Nutrition for providing funding that made this effort possible. Their longstanding support of GMDI, and of this project in particular, is an example of the professional partnerships that are essential in achieving advancement of the field of metabolic nutrition.

GMDI wishes to thank Matt Hawkins, of the North Highland group, for his expertise in facilitating the Strategic Planning conference and for volunteering time to see it to completion over the next year.

Please see the strategy articulation road map

October 6, 2011: first year evaluation of the strategic plan via conference call

The purpose of the conference call was to evaluate the progress made on the following major initiatives/projects that were identified as “high priority” at the initial GMDI strategic planning meeting held in Atlanta in Oct 2010, and state the plan for 2012.

  1. Enhance and Market Metabolic Pro – The Technology Committee will enhance the database, improve marketing to members, and develop a maintenance plan. Beth Ogata reporting.

    The database of Metabolic Pro is continuously updated by Marie who is paid through GMDI. Enhancement of MetabolicPro by making it more user friendly and cleaning up foods “not commonly used” will be started soon, likely early next year. Metabolic Pro is a time intensive project and funding as well as “man power” are the main obstacles. DF enquired if a “paid position” is likely to be needed for maintenance of MetabolicPro in future. BO stated that for timeliness of updates and integrity of data, it will be desirable to have a “paid position” to do this job but the cost is anticipated to be less due to fewer requests for additional foods coming in. Per FR only 80% of licensees have renewed MetabolicPro a second time and finding out the reason for non-renewals by doing a focus group survey is important. The technology committee will take up this task .  Per DF, SY is interested in marketing MetabolicPro to non-US markets as well as for research studies. EJ reported that she has advocated to BioMarin that their Phase III research studies should use MetabolicPro but competing programs (such as the Minnesota database) may make this difficult. Per AC, use of MetabolicPro in research studies will help in improving the credibility and should be pursued further.

  2. Complete 3 disease-specific (MSUD, PROP, PKU) nutrition guidelines – Already in collaborative development with SERC. Frequent progress notifications will be posted on the website. Fran Rohr and Dianne Frazier reporting

    MSUD guideline workgroup, chaired by Dianne Frazier has completed systematic literature and gray literature review, initial Delphi survey and will meet in Nov 2011 in Atlanta to synthesize data and develop initial guidelines. These will be sent to the “Nominal group” in January 2012. Revisions will be made and the guidelines will be sent for second Delphi soon after.

    PPA guidelines workgroup, co-chaired by Elaina Jurecki and Keiko Ueda, has completed the literature review and first round of Delphi survey. They will analyze the results and will be next in line for the Nominal group review. This will likely happen in 2012.
    FAOD guidelines workgroup ,co-chaired by Fran Rohr and  Sandy vanCalcar has finished the literature review for MCADD and VLCADD.  The first Delphi has been sent out for MCADD after which VLCADD Delhi will be sent out. Guidelines for these two disorders will likely not be completed in 2012.

    The speed of completion of guidelines depends on the capability of the research analysts and portal librarians who are funded through the HRSA grant.  Rani Singh reported that continued funding for the completion of the nutrition guidelines of the above three disorders has been requested and verbally assured to her although there has been a 40% reduction in funding for the overall project. Nutrition management guidelines for remaining disorders can be done through collaboration between GMDI and SERC. Once guidelines are available for major disorders, these can be put in the format of ACMG fact sheets at the national level.  Rani Singh stated that the guidelines were developed through a nationally funded project and hence thought will need to be given regarding making them accessible to all.

    PKU guidelines workgroup, co-chaired by Amy Cunningham and Shideh Mofidi, is presently on hold because of a national effort. Kathleen Huntington reported that many members of GMDI are part of the larger collaborative effort by NIH to review and update the National 2000 PKU guidelines particularly in light of the new treatment modalities using LNAA and Kuvan. A consensus meeting will take place in Feb 2012. Rani Singh is chairing the “dietary management” work group. Kathleen Huntington, Amy Cunningham, Beth Ogata, Shideh Mofidi, Fran Rohr, Kimberly Matalon and Phyllis Acosta are also involved in the NIH project.  GMDI members are also involved in the Agency for Healthcare Research and Quality’s (AHRQ) review of literature focusing on effectiveness of new therapies in PKU. Per Kathy Camp, the above initiatives are meant to guide future research in PKU and provide GMDI an opportunity to develop nutritional guidelines for PKU in the near future.

  3. Executive Director  or Director of Development (DD)– The Executive Committee will recruit and hire an Executive Director whose main responsibility will be  to identify opportunities for GMDI to contribute expertise on a broad scale and raise funds for GMDI.

    Amy Cunningham stated that GMDI’s strategic plan is meant to be flexible and in light of other pressing financial needs, such as the revamping of the website, the hiring of the DD is not a top priority although the need is still perceived. The responsibility of the DD will be to focus on GMDI’s mission and spearhead the marketing and fund raising efforts. AC is working on the job description for this position which will likely be filled when GMDI has two years of “seed money” for the position after which the position is intended to be self funded.

  4. Create a library of clinical tools and resources – The Education Committee will increase resources available to members on the website.
    As chairperson of the Education Committee, Cathleen Connolly asked for clarification:

    1. Will the tools and resources be developed on the 4 disorders for which guidelines are being developed?  The opinion of the attendees was that that would be a good beginning.
    2. Should the tools and resources be for families and or clinicians?  They should be for both groups according to the attendees.
    3. What evaluation tool should be used for consistency? Elaina Jurecki  has provided a tool. Rani Singh will send a similar tool she has encountered.
    4. What method of collection of resources and tools should be used? It was suggested that she should contact the chairs of the individual nutrition guidelines group. Carol Williams will provide her with contact information as the workgroups  have already collected a number of resources. This will avoid duplicated efforts.
    5. It was suggested that the chapter written by Carol Williams for the Topics in Clinical Nutrition (TICN) in 2009 has good resources that can be included on the website after making updates.

  5. Fundraising – The Finance Committee will work with each Board committee to identify and implement fundraising projects.

    GMDI conference and vendors are the major fund raising sources but other avenues need to be investigated. Does this initiative need to wait till a DD is hired? Rani Singh suggested that GMDI should hold one fund raising activity per year and this can be concurrent with national meetings and can involve parent organizations. Per Laurie Bernstein, when parent organizations are involved in fund raising for GMDI, their input in how the money raised has to be spent will need to be considered and hence this may not be a good idea.  Sandy vancalcar, who is the fund raising co-chair of the finance committee, is working with her committee to develop ideas/activities. Surekha Pendyal suggested that having a raffle with sponsored prizes or a silent auction using donated item are two simple activities that could be undertaken at the GMDI conference and a benefit race/walk can be conducted on alternate years concurrent with the Abbott conference for fund raising.

  6. Other initiatives completed/in progress:

    1. Established a process for proposing/evaluating GMDI projects
    2. Investigated feasibility of credentialing of metabolic dietitians
    3. Updated mission statement

  7. Re-statement of initiatives for 2011-2012

    1. Metabolic Pro: increase marketing to GMDI members, non-members, research projects
    2. Nutrition guidelines: complete MSUD, PROP, MCADD, VLCADD
    3. Director of Development: complete job description/assess financial status of GMDI to begin hiring
    4. Clinical tools library: begin with the disorders for which guidelines are being written, include others as they are presented. Test the evaluation tool, and update the tools as needed. Discuss with CW the information published in TICN 24:307-321 (2009)
    5. Fund raising: investigate ideas for at least one fund-raising opportunity per year