February 2019 - Click HERE to view more details
The Nutrition Management Guideline for Individuals with Very Long Chain Acyl-CoA Dehydrogenase Deficiency is part of a larger project undertaken by the Southeast Regional Genetics Network (SERN) (HRSA Region 3) and Genetic and Metabolic Dietitians International (GMDI) to develop nutrition management guidelines for inherited metabolic disorders (IMD).
Thank you to the following metabolic dietitians who have formed the VLCAD workgroup, under the direction of Co-chairs, Sandy van Calcar, PhD RD and Mary Sowa, MS RD
Jennifer Beazer, RD, CSP
Laura Duncan, MPH RD
Joyanna Hansen, PhD, RD
Deb Hook, MS, RD
Kristen Narlow, MS RD
Jessica Myers, RD
Surekha Pendyal, Med, RD
Lindsay Raub, MS, RD
Tyler Setlock, RD
Jill Skrabal, PhD, RD
Amie Thompson, RD
Lee Shelly Wallace, EdD, RDN, FADA, FAND
Tarine Weihe, MS RD
The guidelines are developed using an evidence analysis and consensus process. GMDI provides content expertise and SERN/Emory University provides financial support, project oversight and infrastructure. Pat Splett, PhD RD are consultants to the project. Rani H. Singh, PhD, RD and Fran Rohr, MS RD are Co-principal Investigators. Funding for this project has been provided by Health Resources and Services Administration (HRSA) grant number: #H46MC24090.
For more information about the guideline development process click here